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Don’t let food allergies stop the fun

Fred

Family vacations can be incredibly stressful, especially with children or relatives that have disabilities. 

Kristy Durso, owner of Incredible Memories Travel, specializes in travel for people with disabilities. And she knows all about it—seeing as her family has a variety of disabilities. Her advice is to be prepared and to plan well in advance to make your next family vacation memorable and fun for everyone.

She details her family’s special needs: three of them on the spectrum, the youngest child cognitively and intellectually disabled, and a dearth of food issues among them. “I’m a wheelchair user and, due to gastroparesis, I have a special and limited diet,” Kristy confides. She is grateful that one of her kids has outgrown their food sensitivities, but her eldest child has 27 food allergies and her youngest must avoid gluten, sugar, and food dyes. 

“When we travel it takes a lot of coordination and effort,” Kristy laughs, adding, “My husband is the only neurotypical person in our house.” 

To make such complex vacation planning easier, she recommends seeking a travel agent who specializes in this kind of travel. Then it’s time to plan—the sooner, the better. For example, she notes that most vacation venues have a special diets department and recommends contacting them ahead of time with special dietary requests. Be clear about what that guest can or cannot have; chefs will usually be very accommodating of those requests. Most chefs care that their guests enjoy the meal and the whole experience. “It empowers the chefs to go off the menu and come back with creative dishes,” Kristy says, adding that when she finds a place that goes above and beyond, “I am going to go back again.” Such places include Beaches and Sandals—both great resorts with culinary concierge teams who she highly recommends. Also on her list of those who shine are Universal, Royal Caribbean, Disney World, Disneyland and Disney Cruises. “The level of care and respect that Disney showed our family was more than anything we expected or hoped for.”

It’s not only about food sensitivities, though. Kristy notes that there may be a family member who only eats particular foods or those with certain textures. Communicating to the culinary team ahead of time allows the chef to prepare, although she has experienced many happy occasions where their needs were met on the fly too. 

With about 10% of the adult population having diabetes or food allergies, and increasingly more children with food sensitivities, this is an area of accessibility that can’t be overlooked. Dietary inclusion is an issue, and one that Kristy wants to ensure people are informed about. “There are people who want to travel and be adventurous who don’t fit the cookie-cutter mold. Speaking and sharing with people like me and my family is very important. We will bring our families with disabilities and food allergies to places, but we have to know that they are willing to step up their customer service and accommodate us.”

So, when her small son was missing out on a lavish Mickey Mouse cupcake, and the chef presented him with a big, beautiful bowl of berries slathered with whipped cream, it was a special moment. Kristy notes, “Our family works toward an attitude of gratefulness and appreciation for everything that we’re able to do in spite of our limitations.” And that might just be the best topping of all.

Kristy Durso is the owner of Incredible Memories Travel and Founder of the Spectrum of Accessibility Program.

This October, the Incredible Memories Team is hosting an accessible family getaway at Beaches, Turks and Caicos. This stunning property also happens to have a staff that is autism certified by IBCCS. It’s no surprise that all the fully accessible rooms are sold out, but there remain regular rooms, which Kristy’s team can provide some modifications for. And of course, the chefs are busy conjuring beautiful menus for anyone with food allergies. Reserve your spot today.

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Accessible Journeys

Shower shaming

Fred

If anecdotal information is any indication of the true extent of inaccessible showers, as many as 80% could be off-limits to disabled hotel guests. WheelchairTravel.org founder John Morris has assessed hundreds of accessible hotel rooms, and he reports that ADA compliance is “rare” – particularly in the bathroom.

Local building inspectors don’t check accessible hotel bathrooms because they believe it to be an ADA regulation which is the responsibility of the feds, and the federal government doesn’t have the resources to inspect every hotel in America. Hoteliers, who find themselves in the unfortunate position of being in the middle of architects, contractors and regulators, get 100% of the blame for compliance issues. 

I’ve been a member of the Accessible Travel Club, a private Facebook group with nearly 13,000 members, for over two years. It is a group of disabled travelers who are both engaging and willing to answer questions about the destinations and hotels they’ve experienced firsthand.  After noticing a recent surge in the number of comments about showers in accessible hotel bathrooms, I decided to take a closer look and what I found was a revelation. 

Earlier this fall, Sylvia Longmire, a former Miss Wheelchair America and a prolific blogger, posted daily about a road trip from Orlando to Houston for a Formula One Grand Prix event and concert. She expressed frustration that five of the six hotel rooms had shower handles that were not reachable from the shower chair because they were not positioned correctly. She was forced to take sponge baths which made the trip stressful.

Variations in the design of “accessible” American hotel showers often makes them impossible to use for many travelers with disabilities.

John Morris, who also operates the Accessible Development Group consultancy, reports that although the Americans with Disabilities Act (ADA) requires a fixed seat on the sidewall of a roll-in shower, many hotels instead offer a portable chair.

“That’s what a lot of people are forced into… and you have no guarantee that it’s actually been properly assembled, or will be secure, or will even meet your needs,” Morris told USAE News, which first broke this story, noting that many portable chairs have much less surface area than ADA-approved wall-mounted seats.

Even “accessible” bathrooms are often improperly designed so that the fold-down shower seat is on the opposite wall from the showerhead, making it impossible for visitors already seated to access the water source.

It’s really something that should be addressed at the design stage or, at least during a renovation cycle when hotels could just move the chair from one wall to another.

Morris told USAE News that he visited a Miami airport hotel in September 2019. After being given a portable shower chair in his first room he requested another room. The next shower included a built-in seat, but no hand-held showerhead; he tried a third room, which offered a built-in shower seat and a hand-held showerhead installed out of reach of the seat.

“This same level of inconsistency, although it’s seen in this one hotel, is sort of an example of what people are finding across the industry,” Morris said.

In another Florida hotel, the roll-in shower had no seat and the hotel staff had no portable chair to offer — the manager brought Morris a lounge chair from the swimming pool, saying it was the best she could do.

Morris, who uses a wheelchair, has stayed in at least 500 different hotels, over 400 of which he estimates had unusable shower set-ups. The problem is exacerbated by the fact that many hotels don’t offer accessible guest room or amenity photographs on their websites.

Debra Kerper, owner of Easy Access Travel, who is a wheelchair user and travel agent, recently stayed in a hotel where there wasn’t enough room between the shower and toilet for her wheelchair. At check-out she complained to the manager and they quietly offered her a refund. “My clients complain about this all the time,” she told me, which means it can grow into another factor that will affect hotel revenues.

“When a hotel does make their showers accessible, they earn loyalty from the community of travelers with disabilities, who become regular customers as the information is shared” on sources like Morris’ wheelchair travel blog, Morris told USAE News.

What’s amazing is that it’s not really the fault of the hoteliers as most don’t even realize they have this problem because these glaring flaws have been passed through the chain of architects, designers and construction managers undetected for 31 years. It’s another case of bureaucrats in silos not communicating with one another. 

City inspectors don’t inspect accessible rooms because it’s an ADA regulation and they believe it’s the federal government’s job to inspect accessible rooms, but the feds don’t have the manpower to conduct inspections, which is why so many hoteliers are shocked when they learn their showers are not compliant. 

Renovating a hotel shower can be complex–if you can even find someone to provide an estimate. 

TravelAbility contacted Dave Beerson Construction, a 5-star rated contractor, who specializes in accessible bathroom renovations, and was told they declined commercial bathroom work as it was difficult to provide a quote which could require expensive tile removal just to find what was behind the walls. Meanwhile, an interim solution for hoteliers may be the portable shower chair, but there is a maze of options on the market. Here’s a review of five top shower chairs on the market by Lo’Aid. However, moving forward, the problem needs brought to the attention of the people responsible for designing and construction during renovation cycle. 

This spring the annual Hospitality and Design Expo and Conference will be held from April 26 to April 28 in Las Vegas. This event presents a strong opportunity to raise awareness to a group of architects, hotel room designers, and senior-level executives about the pervasiveness of this problem, how easy it is to remedy, and to make the hotel guest experience more comfortable for millions of people. 

As the number of Baby boomers–40% of whom, according to Health Day, age into a disability after they turn 65–triples over the next six years, demand for inclusive hotel rooms will be even greater and more vociferous. They may even be able to avoid federal legal action in the future.

Categories
Accessible Journeys

Don’t let food allergies stop the travel fun

Fred

Family vacations can be incredibly stressful, especially with children or relatives that have disabilities.
Kristy Durso, owner of Incredible Memories Travel, specializes in travel for people with disabilities. And she knows all about it— seeing as her family has a variety of disabilities. Her advice is to be prepared and to plan well in advance to make your next family vacation memorable and fun for everyone.
She details her family’s special needs: three of them on the spectrum, the youngest child cognitively and intellectually disabled, and a dearth of food issues among them. “I’m a wheelchair user and, due to gastroparesis, I have a special and limited diet,” Kristy confides. She is grateful that one of her kids has outgrown their food sensitivities, but her eldest child has 27 food allergies and her youngest must avoid gluten, sugar, and food dyes.
“When we travel it takes a lot of coordination and effort,” Kristy laughs, adding, “My husband is the only neurotypical person in our house.”
To make such complex vacation planning easier, she recommends seeking a travel agent who specializes in this kind of travel. Then it’s time to plan—the sooner, the better. For example, she notes that most vacation venues have a special diets department and recommends contacting them ahead of time with special dietary requests. Be clear about what that guest can or cannot have; chefs will usually be very accommodating of those requests. Most chefs care that their guests enjoy the meal and the whole experience. “It empowers the chefs to go off the menu and come back with creative dishes,” Kristy says, adding that when she finds a place that goes above and beyond, “I am going to go back again.” Such places include Beaches and Sandals—both great resorts with culinary concierge teams who she highly recommends. Also on her list of those who shine are Universal, Royal Caribbean, Disney World, Disneyland and Disney Cruises. “The level of care and respect that Disney showed our family was more than anything we expected or hoped for.”
It’s not only about food sensitivities, though. Kristy notes that there may be a family member who only eats particular foods or those with certain textures. Communicating to the culinary team ahead of time allows the chef to prepare, although she has experienced many happy occasions where their needs were met on the fly too.
With about 10% of the adult population having diabetes or food allergies, and increasingly more children with food sensitivities, this is an area of accessibility that can’t be overlooked. Dietary inclusion is an issue, and one that Kristy wants to ensure people are informed about. “There are people who want to travel and be adventurous who don’t fit the cookie-cutter mold. Speaking and sharing with people like me and my family is very important. We will bring our families with disabilities and food allergies to places, but we have to know that they are willing to step up their customer service and accommodate us.”
So, when her small son was missing out on a lavish Mickey Mouse cupcake, and the chef presented him with a big, beautiful bowl of berries slathered with whipped cream, it was a special moment. Kristy notes, “Our family works toward an attitude of gratefulness and appreciation for everything that we’re able to do in spite of our limitations.” And that might just be the best topping of all.
— Kristy Durso is the owner of Incredible Memories Travel and Founder of the Spectrum of Accessibility Program.
This October, the Incredible Memories Team is hosting an accessible family getaway at Beaches, Turks and Caicos. This stunning property also happens to have a staff that is autism certified by IBCCS. It’s no surprise that all the fully accessible rooms are sold out, but there remain regular rooms, which Kristy’s team can provide some modifications for. And of course, the chefs are busy conjuring beautiful menus for anyone with food allergies. Reserve your spot today

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kalinago

Faith Coyne

Fred

Location: United States

 Disability:Sister has Down syndrome

Since May of 2015 me, my mom and my sister Grace, who has Down syndrome, have been backpacking around the world together. The three of us sold our home in the U.S. with the goal of helping Grace be more active by

walking and being more involved in

community. It was years prior to leaving the United States that my mom and I saw a decline in my sister Grace’s health. At one point, Grace stopped doing anything for herself. She had severely regressed, and we lacked a solution to address it. Through travel, Grace has come into a lifestyle that routinely gets her outside, exercising, and meeting new people. It provides her with regular stimulation and various activities to challenge her a little every day. Almost seven years in and we are still seeing the benefits of travel and are grateful for all the things Grace can do!

 

Through travel, Grace has come into a lifestyle that routinely gets her outside, exercising, and meeting new people. It provides her with regular stimulation and various activities to challenge her a little every day. Almost seven years in and we are still seeing the benefits of travel and are grateful for all the things Grace can do!

Walking with Grace has been the greatest secret to traveling. 

Read more. https://www.faithstravels.com/travel-with-a-special-needs-sister/

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Accessible Journeys kalinago

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accessibility test

Dr. Jennifer Camulli

Dr. Jennifer Camulli on Autism, Inclusion, Accessibility and Expo 2020 Dubai

Dr. Jennifer Camulli

Dr Jennifer Camuli

Dr. Jennifer Camulli has over 30 years’ experience in working with and advocating for people with disabilities. Her previous roles include Certified Accessibility Consultant, Certified Educational Therapist and Head of Inclusion.

She is currently leading the efforts to place accessibility at the heart of planning for Expo 2020 Dubai, the first World Expo to take place in the Middle East, Africa and South Asia region. Running from 1 October 2021 until 31 March 2022, Expo 2020 is a global gathering dedicated to bringing together people, communities and nations to build bridges, inspire action and deliver real-life solutions to real-life challenges.

Visit www.expo2020dubai.com to find out more.

April is World Autism Awareness Month, dedicated to increasing awareness about Autism Spectrum Disorder. Is it possible for someone to be autistic and not know it?

Yes, absolutely. Many people do not know they have autism until they receive an official diagnosis. And even then, if they are very young, they may not know or fully understand what autism means until they are older, or if there is moderate to severe intellectual impairment, they may never really understand it. It’s also becoming increasingly common for adults to come forward for self-referral if they suspect that some of the social and communication challenges they have had since a young age can possibly be accounted for with a diagnosis of autism.

How effective is inclusive education?

Like any process or service, it is only as good as the people delivering it. Globally, there are different approaches to inclusive education, often because of varying levels of awareness, different cultural perspectives, and both the ability and willingness to adapt teaching methods and curriculum content.

What are some of the key variables for the successful implementation of inclusive education?

To begin with, if inclusive education isn’t mandated by the relevant authorities, schools may opt to either not offer it at all or be selective in their admission offers. Equally, if a school’s leadership team isn’t fully committed to the principles of inclusive education, its implementation and practice will also suffer.

It’s also incredibly important to ensure that each and every student has the opportunity to experience success at school, no matter what that looks like. Everyone deserves the right to achieve – it’s tied so intrinsically to the concept of dignity and self-worth. For example, allowances should be made for students to advance with their peers and participate in graduation ceremonies. Even if a student hasn’t met the criteria to officially graduate, they can still be presented with a certificate of achievement and celebrate with their classmates. The need to belong is strong, and schools need to enable this.

What are some of the critical steps for building an inclusive workplace?

Successful inclusive workplaces are those that foster a collaborative work environment, where everyone has a voice. Consultation with the disabled person on what accommodations s/he may need in the workplace, including the option to work from home, facilitates empowerment and trust. Employees should also be provided with regular training on engaging with colleagues with disabilities and it’s a particularly powerful statement when an organisation has a dedicated Inclusion Team, or a group of Inclusion Champions. Consideration should also be given to providing accessible communication for physical and virtual meetings where required, such as live captioning.

What is the theme of Expo 2020 and when/where in Dubai will it be held?

 At Expo 2020 Dubai, you’ll experience the world in one place – a global gathering dedicated to bringing together people, communities and nations to build bridges, inspire action and deliver real-life solutions to real-life problems. Expo’s theme of ‘Connecting Minds, Creating the Future’ is underpinned by three subthemes – Opportunity, Mobility and Sustainability – that we believe are the three key drivers of human progress and prosperity, and are aligned with the Sustainable Development Goals.

 Expo 2020 will take place in Dubai between 1 October 2021 and 31 March 2022, on an incredible 4.38 sqkm site in Dubai South. Dubai is easily reached by sea, air or land, and Expo will be well-served by public transport, including the world-class Dubai Metro and dedicated Expo Rider bus service.

How easy will it be for people of determination to navigate their way around the Expo? What are some of the accessibility services and features that will be in place for them?

People of determination have been a key priority in our planning from the very beginning and we’ve made sure to include a number of measures to enable them to navigate the site easily and safely, to enjoy an incredible visitor experience.

For example, we’ve installed 14 tactile maps around the site which will provide raised and embossed images of the area nearest to them as well as audio output and braille. And we have also developed our PODium app, in collaboration with SAP, an Official Premier Partner of Expo 2020. The app provides 3-D visual mapping, audio navigation and haptic feedback to assist visitors with these needs. Our Thematic Pavilions also have tactile maps to assist visitors in understanding the environment around them. There are 15 Information Centres across the site and an additional seven Information Kiosks that can provide important information to all our visitors.

 In addition to this, we’ve also created four Quiet Rooms on site, with innovative sensory equipment and relaxation areas for any visitor experiencing sensory overload or anxiety, and we will offer ear defenders and sunglasses for visitors with sensory sensitivities. We have developed social stories that will be downloadable from the Expo 2020 website that provide sensory information on the different Expo visitor experiences and will provide ‘Sunflower Lanyards’ on request for those who wish to discretely signal that they have a hidden disability. We are proud to say that these efforts have been recognised by the International Board of Sensory Accessibility, and as we get ready to mark World Autism Awareness Day on 1 April, Expo 2020 is set to be officially named as a Sensory Accessible Event – a first for a World Expo and a first in the entire Middle East.

For our hearing- or vision-impaired visitors specifically, we have installed hearing induction loops at key locations across the site and created service dog relief areas. There will be 3-D tactile models of our flagship architecture, and scannable codes for self-guided experiences narrated through sign language, audio description and written captions.

In addition, tickets will be available free of charge for all people of determination and at half price for their companion.

What is the relationship between the ecogenic domain (built environment), technogenic domain (digital environment), sociogenic domain (social environment) and the sensorigenic domain (sensory environment) and how they are collectively incorporated into the Expo setting to make it more accessible?

Typically, accessibility is approached from either a built-environment perspective based on standards of Universal Design, or a digital environment perspective, for example accessible websites that comply with the Web Content Accessibility Guidelines. These are often done in isolation of one another and focused on standards and codes only. This approach risks missing out on what visitors really need. The holistic approach I refer to merges four domains to achieve a more rounded and inclusive experience.

At Expo 2020, it began with community engagement, which was key to understanding the various journeys that people of determination may take to visit Expo 2020 Dubai. We held accessibility forums that allowed us to hear directly from stakeholders and understand how we can offer them a seamless experience. Our approach is based on the principle of ‘nothing for them without them’.

In taking a more holistic approach, we considered the visitor journey in its entirety, all the way from planning their visit (website accessibility) to arriving in Dubai (accessible services at the airport) and arriving at Expo 2020 via accessible means of transport. This means looking at the social environment (inclusive hiring practices, staff training etc), the built environment (the physical site), the digital environment (our website, apps and digital interfaces) and the sensory environment (quiet rooms, social stories etc.) in parallel and with equal weighting.

How accessible a city is Dubai?

Dubai published the Dubai Universal Design Codes in 2017 and the government has worked quickly to ensure its implementation – this has included retrofitting government buildings and adapting digital platforms and public spaces.

For our many visitors, all major hotels offer accessible suites, the Dubai Metro system is fully accessible, there are accessible taxis, and many restaurants will offer provisions if a visitor advises them in advance. People of determination, including those who are tourists, can avail free parking passes from the Roads and Transport Authority and discounts and privileges from the Community Development Authority’s Sanad card. Entrance fees to a range of visitor attractions are waived for people of determination, including Expo 2020 Dubai. And Emirates Airline boasts dozens of inflight movies with audio description and captions, making the journey to Dubai more accessible.

We have to remember that accessibility is a journey not a destination – it takes time and budgeting to implement for business owners, venues, and spaces. Most tourist venues have provisions in place, while others have established a plan for retrofitting over a time span. Historical areas are more difficult because the integrity of a building has to be maintained and a strategic plan needs to be developed in consultation with accessibility professionals. Nonetheless, in three years, huge strides have been taken.

When travel and tourism began its “reboot” post-COVID, would you say that Dubai is ready for the potential influx of travellers with disabilities who may be visiting, especially after the Expo is over?

Dubai was one of the first cities to reopen to the world last summer, and across the UAE, the authorities have taken clear and decisive action to protect the safety and well-being of all citizens, residents and visitors. For people of determination specifically, the ‘Rest Assured’ initiative was introduced to provide specialised support for the challenges raised by the pandemic.

The health and safety of everyone at Expo 2020, including our workforce, participants and visitors, has always been our first priority in our planning and operations, and the global health challenges of the past 12 months have put this into even sharper focus. We continue to work closely with the relevant local and international authorities to implement and uphold best practice, including capacity control, social distancing, thermal scanners, sanitisation procedures and the vaccination of our workforce.

When we open our doors to the world on 1 October, we will be ready to offer an unforgettable, once-in-a-lifetime experience for every visitor, from every walk of life, from every country. It is our ambition that our industry-leading efforts to provide a fully inclusive event will be an important part of the Expo’s long-term legacy, both regionally and internationally.

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accessibility test

Kenneth Surratt

Living and Leading with Confidence

Kenneth Suratt
Kenneth Suratt

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accessibility test

Tactile Images

Tactile Images – Art the blind can experience

A boy checking out a tactile picture
A tactile photograph of soldiers in war
A mask of a sman with a mustache
Mask, Bill Scannell © Kurt Weston
A blind woman checking out a tactile photograph
Lou Ann Blake touches a tactile photograph in the exhibition
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accessibility test

Patrick Lafayette

Blindness: A different type of insight for Patrick Lafayette

Patrick Lafayette during album launch
“To do something for yourself is one of the greatest things you could ever do. Now, I can express myself! I have so much that I’ve always wanted to express… I’m like a volcano; I’m like Pelee or Mount Etna: I’m about ready to erupt!”
Patrick Lafayette

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accessibility test

Yosef Rubinoff

Yosef Rubinoff : Never Give Up

Yosef Rubinoff
Yosef Rubinoff
A disabled man and his family